The Ethics of Ethical Review

My lit review is coming to an end. My beautiful, ingest knowledge constantly, lit review. I’ve read more books1 in the past two months than in the last two years combined. Having space to sit and read is an amazing thing. The most spoiled, as it were. But the time of ingesting existing information is coming to a close, and the time to start interviews is approaching. And that means ethical review of my process.

The Institutional Review Board exists for good reason. We’ve done some awful shit to each other in the name of science. IRB is there to be sure human subjects are treated with dignity and in a safe manner. It is also required by many institutions to embark upon research, to get funding, and to be published. IRB has a section on its form to indicate institutional affiliation – a section which, if left blank, doesn’t allow you to submit the form. Both academic institutions and the IRB are predicated by the other.

This set up makes it nigh impossible to do “legitimate” research involving humans in the academic context2. I find this morally reproachable. I think anyone should have the opportunity to do research, so long as they do so ethically3. So what’s a robot to do?

I’m looking at having an Informal Review Board, comprised of respected folk around the area of my research, to still assess and push back on the ethics of my study. The questions around IRB are good ones – potential harm to participants, benefits, complications, etc. I would still structure around those, and publish my responses to those questions to the internet and to participants. The people on the board would be putting their own names behind the work I’m doing, which adds in a layer of accountability of me to them, and them to the world.

If I were only to go this route, the costs would be that I wouldn’t have my research explicitly tied to Center for Civic Media at MIT’s Media Lab, tho I as an individual would be. I wouldn’t be able to publish via MIT’s press. The research wouldn’t show up in academic journals. IE, it wouldn’t have the easy notoriety boost up of academic affiliation with such a respected institution. My access to get funding would also be drastically reduced.

The cost of success of the Informal approach gaining legitimacy (regardless of how the research is taken), is informal review becoming a thing which can be done. And what if someone puts people in harm’s way because their board wasn’t as rigorous as an institution which can be held accountable via traditional means? IE, someone doing research on a vulnerable population accidentally pushes personally identifying information out with their results. How would that person be held accountable?

The cost of not taking this approach is being complicit in an institutional system which locks out citizens from the process of research and contribution. And I think that is worse than the other potential costs. But I have to see what the folk who would be on my Informal Review Board say. I’m still looking for someone who is willing to push back on me, constructively but aggressively, who is also willing to be on such a board.

The balance to be had, and thanks to Mako for talking through this with me, is to do both at the same time. This would lay the path for the institutionally unaffiliated while also making use of a solid resource of COUHES (MIT’s IRB), addressing my deepest concern. To mitigate the potential harms of this approach gaining traction in worrisome ways, I’ll be working with the engine room to examine the process itself. And the issues of not having access to institutional credibility and funding will be alleviated by taking the formal route as well. Sure, it’s more work, but I think it’s worth it. I’ll publish my responses and process here in fairly short order.

1a. Book List:

  • Thinking in Systems – to gain a shared language with systems thinkers
  • The Fifth Discipline – to expand on that language, gain antedotes
  • Protocol (How Control Exists After Decentralization) – about new social structures and expectations
  • Revolutions in Reverse – what winning looks like, group creation and unification
  • Take Back the Land – internal conflict and societal skewing
  • The Future of the Internet and How to Stop It – costs and benefits of generative systems 
  • Poor People’s Movements – costs and benefits of scaling up

1b. Theses

2. Sure, you can work with a non-academic research lab, but even that is based upon affiliation with a formal organization, with its own expectations.

3. “Ethically” of course being a contextual term, but still one worth striving towards while also examining on a regular basis.

Project-Based Collaborations / Collusions

In starting research with Center for Civic Media, I get to sit and read for hours a day. Go to conferences which seem interesting. Attend talks of people I’ve read the work of. It is absurd. I still don’t like the institution of academia, but that’s because everyone should have access to such resources, not because I don’t like (and appreciate) the opportunities. My research is on how organizations with distributed power scale. In this area of study, decentralization or distributed power in an group is referred to as “flat.” “Decentralized” as a stand-alone term usually means how resources are distributed, rather than power structures. Read more about that on Charlie DeTar’s great post.

This means I’ve been reading rather a lot around how activist groups change over time based on how they interact with the rest of the world, each other, and themselves. Most recently, I finished Revolutions in Reverse, a collection of David Graeber essays. A standard sequence which became clear to me is the following:

  • Individual groups work towards their objective from their perspective, build up some sort of core and maybe a following.
  • Occasionally, something massive comes up, and some of these groups band together. While they have different perspectives, they share an objective for a short period of time. Basically, alliterative alignment-based alliance.
  • After the shared objective is achieved, the thrill of victory makes groups want to continue to work together. Other shared objectives are sought, but alliances crumble due to the different perspectives which made the larger grouping so robust in its diversity.
  • Individual participants become disenchanted because of these dramas and depart from the larger grouping at the least, and often their orginial core group as well.

Essentially, people set aside basic debates while a pressing objective is at hand. In facilitation work, instigating projects is a great way to get people over their social anxieties and political differences in order to create bonds which later might surplant those issues. As my friend Slim once said on the twitters, “sweat is a far more honest social lubricant.” The issue is when those collusions are expected to last longer than is actually reasonable.

What I have been wondering is this: Why don’t we just shake hands after the larger objective has been achieved, and go on our merry ways? To me, this is far more sustainable culturally. Personally, one of the things which I love most about meeting people doing good work completely unrelated to my own is that there are so many things wrong in the world, in such intertwined and complex ways, if we were all working on the same aspect, no impact would be made. I don’t want to continue being joined forces, because I want to know you have my back in the larger scheme of things. Talk about the breakup before you start dating (or the “Founder’s Prenup“) – adults should be able to act like adults, even when they go their separate ways. Then you have the ability to work together on big things in the future, instead of still being butthurt about something that happened in the past.

I see this approach as similar to the move to portfolio-based employment from one long career employment. People associate with you for a discrete project based on what you’ve done in the past, which then gets added to your portfolio. Why not the same for social structures and political movements? We gather around a project, celebrate it when it’s done, and move on. Sometimes we end up working consistently with the same set of people because it makes a lot of sense, but it’s not the starting assumption. In my wariness, I don’t believe this will solve large problems, only allow us to fail for better reasons. Does anyone have any examples around this, of it working or not working, or at least being tried?

Potentially related: Temporary Autonomous Zones

The Informal Side of Sandy Response

So, apparently I was at the White House today – my first time, as I never went on any of those tours as a kid. In a series about the FEMA Think Tank, this was the first to happen there, and somehow they decided inviting me was a good idea. Sure, I know inviting the rest of the field time is a good move. But this satire-punk kid? Oof.

The whole thing was streamed as a phone call (that, and other notes, will be available at http://www.fema.gov/fema-think-tank within a week or two. The chat was live-tweeted as well via the hashtag #femathinktank – some interesting stuff there.

img by Scotty! Thanks for indulging Galit and myself.

img by Scotty! Thanks for indulging Galit and myself.

After the mics were off, we did a round-table on connecting the formal to the informal – honest discussion about some tough ideas on moving forward. I was asked to be one of the four people to lead us out. Here’s a summation of what I was getting at:

We’re talking about connecting the formal and informal. Somewhat obviously, I’m from the informal

Individual voice (sometimes represented through social media) is important in response because it gives high resolution and granularity to our understanding of what is going on. Instead of dropping in one massive block of resources, we can figure out where tiny bits go. How communities can help themselves and help each other. In short, mutual aid. This is couple with wanting to respond at the pace our technology has made us accustomed to.

I look at this a bit like the record industry in the age of the internet. FEMA right now can become kickstarter or some other platform on which people can connect directly, and have a way of interacting and supporting each other. Through providing those connections, you can bring your institutional knowledge and directive of assistance to bear on interaction. Or you can be like the record industry and become not only obsolete but also unliked. (I like you all.)

How do we create space for innovation in tech and in policy while allowing paths for systematizing? The things that work can’t just be ad hoc all the time. Challenges are bigger than we can plan or train for – have to give people space and support to figure it out on their own.

The tools exist, as we’ve shown, and we can make more. What is needed is an assumption and platform for us working together.

Be transparent about what you do, how to be in touch. It’s already chaotic, help make it less so. The populations we aim to help can be included in that knowledge. We need your bigger abilities and institutional knowledge. We as individuals also have to learn to support you as our government. So many of these things happen out of directed conversations and open minds.

Ialsomaybetookapictureofatinyoccupytentwhileinthewhitehouse. And slid down the railings. ([x] World Bank [x] White House [ ] NASA). I wonder if they’ll ever let me back.

Studying Decentralized Structures

So I have just been officially offered a research affiliate position at the Center for Civic Media out of MIT’s Media Lab. I’ll be moving to Boston in February. Zomg. I’ll be spending 20-30% of my time studying how decentralized structures scale. The rest of my time will continue to be spent on Geeks Without Bounds (funnily enough, figuring out how to scale it). I assume things like this lead to papers and things. I’m also working on fellowship applications. Here’s a basic summary, and a request for help.